As awareness of ADSs has grown, so, too, have the number of national organizations dedicated to research, advocacy and related services. The following list describes the purpose of each organization as cited on their web sites:
Autism Genetic Resource Exchange (AGRE)
AGRE provides biomaterials and an unprecedented resource of phenotype and genotype information that is freely available for analysis by members of the scientific community.
Autism Research Institute (ARI)
The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism. ARI also disseminates research findings to parents and others worldwide seeking help.
Autism Society of America
ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, and supporting research and advocating for programs and services for the autism community.
Autism Speaks is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder.
NEW! The Autism Speaks 100 Day Kit
Created specifically for newly diagnosed families, to make the best possible use of the 100 days following the diagnosis of autism. The kit contains information and advice collected from trusted and respected experts on autism as well as from parents of children with autism. There is a week by week plan for the next 100 days, as well organizational suggestions and forms that parents/caregivers can use to help with the paperwork and phone calls, as they begin to find services for their child.
The Daniel Jordan Fiddle Foundation
P.O. Box 1149
Ridgewood, New Jersey 07451-1149
TOLL FREE: 877-444-1149
The Daniel Jordan Fiddle Foundation is a 501 (c)(3) National Autism Organization. The mission of The Daniel Jordan Fiddle Foundation is to develop and award grants to programs that benefit adolescents and adults with Autism Spectrum Disorder. For more information visit our website at http://www.djfiddlefoundation.org
Eunice Kennedy Shriver Center
Now part of the University of Massachusetts Medical School, the Eunice Kennedy Shriver Center is dedicated to improving the lives of individuals with developmental disabilities and their families, the Shriver Center promotes the understanding of neurological, cognitive and behavioral development associated with developmental disabilities, with an emphasis on mental retardation.
First Signs, Inc.
First Signs, Inc. is a national non-profit organization dedicated to early identification and intervention of children with autism and other developmental disorders. Its mission is to ensure the best developmental outcome for every child by promoting awareness regarding the most important and often overlooked aspects of development: social, emotional, and communication.
National Autism Association
The mission of the National Autism Association is to educate and empower families affected by autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights. Their mission is to educate society that autism is not a lifelong incurable genetic disorder but one that is biomedically definable and treatable.
Parents Helping Parents
PHP provides education and skills training, information, guidance, and peer support for families with the unexpected diagnosis of and ongoing impact of childhood disabilities, including but not limited to intellectual, learning or physical disabilities and special health care needs.
The mission of the YAI Network is to create hope and opportunity for people with developmental and learning disabilities and their families.
We believe that every person, at every age and level of ability, has the potential for growth. We also believe that each individual is entitled to the same dignity, respect and opportunities as all other members of society.