Government Resources

Organizations such as Autism Speaks believe the federal government must play a significant role in research into the cause, treatment, and ultimately a cure for autism, provide relief to families through treatment, support services and best practices identification, and extend financial relief through autism insurance mandates and directed tax relief.

Some government agencies do provide informational pamphlets and booklets for families.  Following is a list of government fact sheets (and web sites in which fact sheets can be downloaded) that provide assistance to families dealing with an individual on the autistic spectrum:

National Institute of Child Health and Human Development – Autism and Genes
http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=4123

This 12-page fact sheet explains what is known about ASDs and genes and describes some NICHD-supported research on this topic for parents and families.  Date: 2005

National Institute of Child Health and Human Development – Autism and the MMR Vaccine--Autism Research at the NICHD http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=219 - This eight-page fact sheet for parents and families explains what is known about ASDs and vaccines and describes some NICHD-supported research on this topic.  Date: 2001

National Institute of Child Health and Human Development – Autism Questions and Answers for Health Care Professionals- Autism Research at the NICHD
http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=212
This 12-page fact sheet for health care professionals and those with medical backgrounds answers common questions about ASDs, their causes, their symptoms, their treatments, and NICHD-supported research on ASDs and provides references for additional information.  Date: 2001

NYACTS
New website from New York State for children and adults on the autism spectrum.
www.nyacts.org

New York State Education Department - Individuals with Disabilities Education Improvement Act 2004
http://www.vesid.nysed.gov/specialed/idea/home.html
Information about and the text for the Individuals with Disabilities Education Improvement Act, which reauthorized the Individuals with Disabilities Education Act (IDEA), on December 3, 2004. 

Centers for Disease Control and Prevention Autism Spectrum Disorders Among Children
http://www.cdc.gov/ncbddd/dd/documents/autism_factsheet020306.pdf 
A fact sheet with information on the CDC’s activities regarding autism. 

National Research CouncilEducating Children with Autism
http://books.nap.edu/openbook.php?record_id=10017&page=R1 – This book sponsored by the US Department of Education is filled with recommendations that may be used to obtain an appropriate educational program for your child.  It can be downloaded one page at a time.

 

 

Useful government web sites regarding autism spectrum disorders include:

 

 

Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/ncbddd/autism/index.htm
The CDC’s National Center on Birth Defects and Developmental Disabilities is a very good resource on autism. These pages have a number of resources that are useful, including a page describing autism, updated list of ASD projects at CDC, list of governmental projects at other federal and state agencies, resources, a great kids’ page (geared to children between 4th and 6th grade) for teaching about ASD, and an excellent introductory section entitled “About Autism.”